![]() Diagnosed after having a breast biopsy that it was called CLL stage 4. Underarms, elbow arms, and groin area on both sides. Little did I know that the nodules started coming, moving down to my neck, face behind my ears, breast, and eventually everywhere. Hello, what I've noticed is that in the beginning, one extremely large node started on the left side of my head and at the time, I was told to use a warm compress on it bkz no one knew what it was and was given an antibiotic. Some people deal with nodes for many years before treating. Ibrutinib literally melted mine away in the first week or two. In the bigger picture I would want to know if your mom is nearing treatment time as a lot of the cll drugs we take do a great job of shrinking nodes. I would put some moist heat on it, just a hand towel soaked in warm water, and take tylenol. I could still feel the lump, but it stopped hurting for no particular reason I could tell. After a day or so, the one I had that was particularly painful calmed down. I do think nodes either tend to wax and wane or you get used to them. Some people suggest castor oil packs, I never tried that. Applying a warm compress and taking tylenol helps. I do not think there is a whole lot you can do. I suppose that's generally true, but you can get one in the wrong spot and they hurt like hell. ![]() My nurse told me cll nodes are not painful (But if I could have lent her mine for ten minutes so she would know ).
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